ArjenArjen
Moderator: Forum Moderators
New appointment for the provocation test made.. Since I was getting lots of rash just before our trip to Antwerp, and I felt quite bad, so we drove off but turned around and called it off. It would be to stupid to do test that would trigger such reactions when coming in such bad condition, it would have been pointless.
Today and yesterday both bad days, but now I am good again. hope I will have lesser complaints tomorrow.
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A intensity level chart I would like to handle:
- Superb = All well, no complaints (rare lately)
- Good = All well, tiny complaints (uncommon lately)
- Normal = All ok, annoying level of complaints (common)
- Bad = Not so ok, touch times at peak of attack, (uncommon) (but lately common - uncommon)
- Very bad = Not ok at all. Hardly able to function during peak of attack (uncommon - rare)
- Extreme! = Fucked up! Not able to be left alone, can result in immediate required healthcare. (very rare)
Today and yesterday both bad days, but now I am good again. hope I will have lesser complaints tomorrow.
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A intensity level chart I would like to handle:
- Superb = All well, no complaints (rare lately)
- Good = All well, tiny complaints (uncommon lately)
- Normal = All ok, annoying level of complaints (common)
- Bad = Not so ok, touch times at peak of attack, (uncommon) (but lately common - uncommon)
- Very bad = Not ok at all. Hardly able to function during peak of attack (uncommon - rare)
- Extreme! = Fucked up! Not able to be left alone, can result in immediate required healthcare. (very rare)
Total Random!
(which is the most frustrating part as you can probably imagine)\
Today I got an "attack" at 21:40, and it was getting quite big, and rash intensified fast at 22:30 but then suddenly dropped after 23:15 in intensity. It holded on slightly till like 02:00, but very minor, now all gone. No rash, no complaints.
So instead of a long run of serious rash, which can take 4-8 hours... (+ all complaints which come in as a bonus :S) The peak moment was only lasting 45 mins. which is quite unusual.
Weird stuff every day. :S
(which is the most frustrating part as you can probably imagine)\
Today I got an "attack" at 21:40, and it was getting quite big, and rash intensified fast at 22:30 but then suddenly dropped after 23:15 in intensity. It holded on slightly till like 02:00, but very minor, now all gone. No rash, no complaints.
So instead of a long run of serious rash, which can take 4-8 hours... (+ all complaints which come in as a bonus :S) The peak moment was only lasting 45 mins. which is quite unusual.
Weird stuff every day. :S
Other bad/good news though.
I am working again since this week. (Forced, 6 hours instead of 8, and adapted work)
2/3 went good. 2nd day I was bad, and did very easy work
Today my boss was slowly telling the company wants me to check out if I could be doing 8 hours a day next week.
Madness.
I should not work at all, in my current state, and yes I have good moments, but this pushing is fucked up bigtime!
I am working again since this week. (Forced, 6 hours instead of 8, and adapted work)
2/3 went good. 2nd day I was bad, and did very easy work
Today my boss was slowly telling the company wants me to check out if I could be doing 8 hours a day next week.
Madness.
I should not work at all, in my current state, and yes I have good moments, but this pushing is fucked up bigtime!
almost fired
Almost fired, having chat with HRM friday
Complaints are the same
Complaints are the same